Still Fighting: My Journey with ALS

ALS is a degenerative, always-fatal disease. The average life expectancy after diagnosis is two to five years. It will take away your ability to walk, talk, breathe, and swallow. You will slowly become paralyzed and be dependent on others. Well, that will hit you like a ton of bricks!

After about a year and a half of having symptoms and seven months of testing, Lesley was diagnosed with this horrible, nasty, unrelenting disease. This can’t be true! She had done the Ice Bucket Challenge just four short years ago for another woman her age in her small Southwest Iowa town. This can’t be happening to her too. It is supposed to be such a rare disease.

Soon after her testing had begun, she started a small, closed Facebook group to use as a form of support and a way to communicate with family and friends. But God had something else in mind for this page. Suddenly, Lesley’s page was reaching so many, and God’s Word was being heard.

This is a funny, heartwarming, tear-jerking, and honest look at the author’s everyday life with ALS. With God and her faith, she is navigating untraveled territory, finding clinical trials for new treatments for ALS. As long as she is able, she will participate in clinical trials to help further research. She has also become an advocate for ALS.

We need to get the word out about ALS. We need to create funding to further research. We need to find a cure!


--Lesley Krummel